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Uber Sues NYC to Bar New Wage Rule for Food Delivery Workers
Uber Sues NYC to Bar New Wage Rule for Food Delivery Workers
Rivals Uber Technologies Inc., DoorDash Inc. and Grubhub Inc. joined forces in suing New York City to block
2023-07-07 02:51
The Best Gaming Chairs for 2023
The Best Gaming Chairs for 2023
Whether you play PC games on a monitor or console games on a TV, you
2023-07-07 02:28
Father issues warning about mermaid tail swimsuits after five-year-old daughter almost drowns
Father issues warning about mermaid tail swimsuits after five-year-old daughter almost drowns
A father has issued a safety warning about mermaid swimming outfits after his five-year-old daughter nearly drowned. Adam Lisberg initially shared the warning on Twitter in July 2020, where he’d recounted the events that led to his daughter being hospitalised for two days. According to Lisberg, the “scary story” revolved around his daughter Annabelle and her older sister Ruby, seven, both of whom “love mermaids”. “This is a scary story starring my daughter Annabelle. I’m telling it as a warning about kids, pools and swimsuits because I don’t want anyone else’s kids to end up in the ER or the ICU, like she did for two days,” Lisberg began the Twitter thread, which included a photo of his daughter in a hospital bed. In subsequent tweets, the father-of-three explained that he and his wife had ordered their daughters two-piece swimsuits with matching mermaid tails after getting an inflatable pool for the driveway. Lisberg then shared a photo of the paddling pool in question, which featured water that reached only up to the childrens’ legs. In the post, Lisberg noted that he and his wife “know to be careful” and “know kids can drown in anything” and to “watch them”. “Still, things can happen,” he wrote. According to Lisberg,the incident occurred while his daughters were playing in the pool while wearing their mermaid swimsuits and he was in the kitchen. “Sunday afternoon, the mermaids were in the pool. I was in the kitchen overlooking the pool, window open so I could hear them, looking at them every minute or two,” he wrote. “Then Ruby came inside and told me calmly that Annabelle was underwater and wasn’t moving, so she pulled her out.” Lisberg said that he looked outside to find his five-year-old daughter lying on the ground beside the pool with her arms inside her mermaid tail and “not moving”. After rushing outside, Lisberg said he picked up his daughter, who “didn’t react,” despite her eyes being “wide open”. In the emotional Twitter thread, the father then recalled hearing his daughter cough a little while questioning how long she’d been under the water and “what no oxygen to the brain looks like”. According to Lisberg, he began to perform CPR that he’d learned when his daughter was born, at which point Annabelle began to cry and cough. “Water, mucus, then vomit. This is all good,” he wrote. At this point, Lisberg revealed that he’d called 911, and that Annabelle had begun to cry but still wasn’t able to form words. The father then explained what had happened, as told to him later by his daughters. “Ruby said Annabelle pulled that mermaid tail up to her shoulders and tucked her arms inside. And as Annabelle told us later, she tried to ‘play potato’ by lying down in the water. But she couldn’t reach her hands out to get up,” he wrote. “Annabelle said she tried to talk, but the words just turned into bubbles. I will never get that image out of my head.” In the Twitter thread, Lisberg then credited his eldest daughter for saving Annabelle’s life, as the seven year old had seen that her younger sister “wasn’t coming up”, at which point she pulled the five-year-old’s head out of the water, before pulling her completely out of the pool. “She guessed Annabelle was only under for about 30 seconds,” he wrote, before adding that paramedics arrived within five minutes and measured “good blood oxygen” levels as Annabelle began to recover. However, despite spending just 30 seconds underwater, Lisberg said the five year old had to spend two days in the paediatric ICU. “Even a little water in the lungs, especially if it has chlorine, can spark a delayed reaction as the body fights injury,” he wrote. “She had a temperature and elevated pulse and breathing for almost a day after. Needed oxygen to kick it.” According to Lisberg, when Annabelle came home, she was the “same giggly bubbly silly sparkly girl she was,” with the father-of-three noting that his family is “indescribably lucky”. “I cannot imagine what it’s like to be the parent who didn’t get lucky like this,” he wrote. Lisberg concluded the Twitter thread thanking those who had read it before admitting that he hopes it “haunts” them. “So, thank you for reading this. Frankly, I hope this haunts you. I share it because I want you to never take any kids’ safety for granted, especially in water, no matter how shallow, even for a minute,” he wrote. “And maybe skip the mermaid tail. She’ll be okay without it.” According to the Centers for Disease Control and Prevention (CDC), more children ages one to four die from drowning than any other cause of death in the United States, and for children ages five to 14, drowning is the second leading cause of “unintentional injury death” after car crashes. Speaking toToday about the experience, Lisberg said that his daughters had owned similar swimsuits in the past, and that he and his wife had thought they would be safe because the pool was “two feet deep”. “Even if they sit down they can get themselves up,” he explained. He also noted that he’d been aware, like “every parent,” that you have to watch children “like a hawk and you have to be careful all the time”, but that he’d thought it would be okay for him to watch from the kitchen as he supervised his five-year-old son’s attempt to make guacamole. Lisberg also shared the fear he’d felt when he reached his daughter, with the father-of-three admitting that he’d “thought she was dead”. As for the quick response of his daughter Ruby, Lisberg described his eldest daughter’s rescue as “incredible”. “She got her sister completely out of the water. It was incredible,” he said, adding that the seven-year-old’s first instinct had been to protect her sister and “she did”. In addition to avoiding swimsuits that may obstruct a child’s ability to move, a swim instructor recently warned parents against buying blue bathing suits for their children. @scarnati.swim Just dont do it! Why think about which bathing suits for the splash pad? Just buy bright ones!! ☀️☀️ #selfrescue #selfrescueswimming #selfrescueswim #watersafety #drowningpreventionawareness #springhillisd ♬ original sound - According to Nikki Scarnati, a certified ISR (infant swimming resource) instructor who goes by the username @springhill.isr on TikTok, blue bathing suits can make it difficult to see a child underwater. The Independent has contacted Lisberg for comment. Read More Experts advise on how to stay safe while swimming in open water Children’s swim instructor issues warning about blue bathing suits Daniel Radcliffe says seeing Erin Darke become a mother is ‘most incredible thing’ Fiona Phillips target of telephone scam following Alzheimer’s diagnosis Disability Pride Month: Motor neurone disease diagnosis spurred us on to get married
2023-07-07 02:24
Daniel Radcliffe says seeing girlfriend Erin Darke become a mother is ‘most incredible thing’
Daniel Radcliffe says seeing girlfriend Erin Darke become a mother is ‘most incredible thing’
Daniel Radcliffe has spoken out about the joys of raising his son with his longtime girlfriend, Erin Darke. Radcliffe, 33, opened up about becoming a father during a recent interview withE! News. His comments came days after he spoke about parenting for the first time, with the actor confirming that he welcomed a “little boy” with Darke in April. Speaking to E! News, the Harry Potter star noted that while he’s enjoyed his time with his son so far, he’s also loved seeing his partner become a parent. “It’s a crazy thing, but it’s also really beautiful, watching my girlfriend become a mum,” he said. [It’s] really the most incredible, beautiful thing to be witness to. So, it’s great.” He poked fun at how grown-up his son is, as he joked that the baby is “fully talking at three-months-old”, and is “very advanced”. The actor then clarified that his child has reached a different milestone, adding: “He’s smiling and that’s all I need. That’s awesome. Some people have to wait a lot longer for that so I’m really happy with that.” During an interview withEntertainment Tonight on 3 July, Radcliffe first revealed that he and Darke were parents to a son, who they welcomed earlier this year. He also acknowledged that he’s been taking some time off from work to focus on his family “It’s great. It’s crazy and intense,” he said about becoming a first time dad. But he’s wonderful and Erin is amazing - it’s a real privilege also to have this time with him. I was always going to take some time off, which not everyone is able to do, and so I’m able to kind of just be here with him a lot, which is lovely.” The Kill Your Darlings star noted that as his child gets older, he will probably be more considerate about how many acting projects he takes on. “It hasn’t really yet affected things, but I really like spending time with him, and I think I’m gonna miss him when I go back to work later in the year,” he said. “So, I will definitely be I think a bit more selective - not more selective, I’ve always been selective, but I think I’ll probably work a little bit less for the next few years.” However, according to Radcliffe, he doesn’t plan to leave acting anytime soon. “I’ll never be stopping. I don’t think that’s good for me either,” he added. In an interview with Newsweek, Radcliffe also opened up about starting a family while working in Hollywood. More specifically, he explained how his own experience with childhood stardom will influence how he parents his children one day. “I want my kids, if and when they exist... I would love them to be around film sets,” he said. “A dream would be for them to come onto a film set and be like ‘God, you know, I’d love to be in the art department. I’d love to be something in the crew.’ Some part of this, but not from that.” The Weird: The Al Yankovic Story star added that even though he enjoys acting himself, he “wouldn’t want fame for [his] kid”. “I think if you can get a situation where you’re on film sets without necessarily [thinking] oh, this is gonna be a big deal in your life, that’s great,” he said. “Film sets are wonderful places. I think a lot of the time it can be wonderful for kids. But it’s really the fame side of it that should be avoided at all costs.” While he recently opened up about fatherhood, Radcliffe has not yet revealed what the name of his new baby is. This doesn’t necessarily come as a surprise, since he and Darke, who’ve been dating since 2012, kept the news of their pregnancy relatively private. Read More Daniel Radcliffe gives frank answer to possibility of joining Harry Potter series Daniel Radcliffe opens up about fatherhood for the first time Daniel Radcliffe shares feelings about new actor playing Harry Potter Daniel Radcliffe opens up about fatherhood for the first time Fiona Phillips target of telephone scam following Alzheimer’s diagnosis Disability Pride Month: Motor neurone disease diagnosis spurred us on to get married
2023-07-07 01:23
Restaurants Are Adding Tiny Seats for Big Luxury Handbags
Restaurants Are Adding Tiny Seats for Big Luxury Handbags
In the opening episode of Season 2 of And Just Like That …, there’s a scene stealer, and
2023-07-06 23:54
Ohio voters are likely to decide the future of abortion rights
Ohio voters are likely to decide the future of abortion rights
Voters in Ohio will likely decide if the state’s constitution should enshrine the right to abortion care, after abortion rights advocates collected tens of thousands of signatures on a petition to put the issue on ballots this fall. If certified, those 710,000 signatures – roughly 300,000 more than required by state law – will place a proposed constitutional amendment asking whether “every individual has a right to make and carry out one’s reproductive decisions.” A statewide vote for abortion protections follows a wave of anti-abortion laws in the aftermath of the US Supreme Court’s decision to strike down a constitutional right to care last year. More than a dozen states, mostly across the entire US South, have effectively outlawed most abortions. But the Supreme Court decision to overturn the half-century precedent under Roe v Wade also fuelled efforts to protect abortion rights across the country, including in neighboring Michigan and Kentucky, where voters in both states voted to support abortion rights in ballot measures last year. After the Supreme Court’s ruling, Ohio lawmakers swiftly outlawed most abortion after roughly six weeks of pregnancy, a law that is currently suspended by a state court injunction but could be reinstated by the Ohio Supreme Court. A vote to enshrine abortion rights in the state’s constitution would effectively overrule any such law. Abortion rights advocates and providers have warned that Ohio’s ban, which does not include exceptions for pregnancies from rape or incest, ignited a healthcare crisis that endangered patients and their families across the state, forcing people to seek care hundreds of miles out of state and navigate complicated legal and medical minefields while experiencing pregnancy complications. The petition launched by Ohioans for Reproductive Freedom and Ohio Physicians for Reproductive Rights will head to the secretary of state, which has until 25 July to determine the validity of the signatures. The campaign launched with an open letter on 7 July of last year signed by hundreds of physicians rejecting the state’s anti-abortion law. “Over the past year, support for the amendment has grown exponentially thanks to our partners at [Ohioans for Reproductive Freedom], the thousands of volunteers who gathered signatures in communities across the state, and the hundreds of thousands of people who added their names to our petitions,” according to a statement from Dr Lauren Beene and Dr Marcela Azevedo, co-founders of Ohio Physicians for Reproductive Rights. “Today, the message we and they are sending is loud and clear: ‘let the people decide,’” they said. The campaign will magnify the role of Ohio – a state that voted for Donald Trump by more than 8 percentage points over Joe Biden in 2020 – in the 2024 presidential campaign and the renewed battle for abortion rights surrounding it, as Republican candidates and members of Congress weigh federal legislation that would outlaw or severely restrict abortion access nationwide. President Biden and Democratic candidates have signalled the central role that abortion rights protections will play in upcoming campaigns, alongside their warnings of a GOP-controlled White House and Congress legislating on abortion at the national level. Last year, a record number of voters in Kansas – a state that Mr Biden lost by more than 15 percentage points in 2020 – turned out for an election to reject a Republican-drafted amendment that would strip abortion rights from the state’s constitution, the first test for abortion rights put directly to voters after the ruling in Dobbs v Jackson Women’s Health Organization. That measure was shot down by nearly 20 percentage points, sending a resounding message that underscored the immense unpopularity of the Supreme Court’s decision. The president has repeatedly invoked that election victory in remarks supporting abortion rights in the months that followed, stating that the Supreme Court “practically dared women in this country to go to the ballot box and restore the right to choose,” and that anti-abortion lawmakers vastly underestimated how Americans would respond. Following the outcome in Kansas, Mr Biden pointed to the justices’ own writing in the Dobbs decision: “Women are not without electoral or political power.” “They don’t have a clue about the power of American women,” he said. “In Kansas, they found out women and men did exercise their electoral political power with a record turnout.” Read More Man sentenced to life in prison for rape of 10-year-old girl in Ohio abortion case that drew national attention Senator who once worked at a Planned Parenthood warns that Republicans are planning a national abortion ban One year after Roe v Wade fell, anti-abortion laws threaten millions. The battle for access is far from over
2023-07-06 22:48
Fiona Phillips target of telephone scam following Alzheimer’s diagnosis
Fiona Phillips target of telephone scam following Alzheimer’s diagnosis
Fiona Phillips found herself to be the victim of a telephone scam following her Alzheimer’s diagnosis. The former breakfast TV presenter, 62, was told she had the condition 18 months ago after she experienced symptoms of anxiety and brain fog, and has since disclosed her diagnosis to the public. Phillips, who is currently taking part in a drug trial that scientists hope could revolutionise the treatment of the incurable illness, has spoken out about an experience where she was scammed over the phone. In a new interview with The Mirror, Phillips explained she was scammed by a person who called her and managed to take money out of her bank account. The publication reports that Phillips was scammed out of “thousands” of pounds but was refunded by her bank. The journalist, best known for presenting the ITV breakfast programme GMTV, told The Mirror that she was reluctant to tell her two sons, Nat, 24, and Mackenzie, 21 – who she shares with her husband, This Morning boss Martin Frizell – about her condition. “I just didn’t want to make a big thing out of it where we all sit down as a family and announce we’ve got something to tell them,” she said. “And I was worried they might be embarrassed in front of their friends or treat me in a different way. And it’s not like I’m doing anything out of character.” Symptoms of Alzheimer’s include memory problems, like forgetting about recent conversations or events or becoming increasingly disorganised. Others include language problems, changes in mood or spatial awareness. It is typical that family members, friends and work colleagues may notice these changes first, often before the person themselves. Phillips, who took part in BBC’s Strictly Come Dancing in 2005, shared that she and Frizell had blood tests to check whether their children could inherit the disease. “We wanted to know in case we needed to prepare the boys to make some difficult decisions later in life,” Frizell told the publication. “When the results came back as negative, it was a huge moment – such an enormous sense of relief. There’s no Alzheimer’s on my side of the family and thank goodness it seems the boys have not inherited from Fiona’s side of the family.” Read More Woman exits plane after tirade about passenger who is ‘not real’: ‘Final Destination vibes’ The Barbie press tour has finally rescued Margot Robbie’s red carpet reputation Fans mistake Jennifer Garner and Ben Affleck’s daughter Violet, 17, for her mother in new photos This is the lesser-known symptom of Alzheimer’s that could affect drivers The shared symptoms of menopause and young onset dementia Fiona Phillips Alzheimer’s diagnosis at 62: 7 ways to reduce your risk
2023-07-06 21:22
Warren, Booker Press Bed Bath & Beyond on Worker Severance Pay
Warren, Booker Press Bed Bath & Beyond on Worker Severance Pay
Senators Elizabeth Warren and Cory Booker are pressing Bed Bath & Beyond Inc. on an earlier move to
2023-07-06 20:23
Tom Cruise, Barbie Are Hollywood’s Last Hope for Summer Success
Tom Cruise, Barbie Are Hollywood’s Last Hope for Summer Success
Indiana Jones and the Dial of Destiny, the fifth film in the Walt Disney Co. series about a
2023-07-06 17:58
Lioness Katie Zelem: Nerves are good – it’s just about channelling them the right way
Lioness Katie Zelem: Nerves are good – it’s just about channelling them the right way
Manchester United star Katie Zelem wants one thing if England win the World Cup: Oreo milkshakes. “After games, I like to have an Oreo milkshake. That’s my go-to thing – so simple and easy, but I just love it. So, if we win, I will have a lot of Oreo milkshakes,” Zelem, 27, says with a laugh. But if Oreo milkshakes are Zelem’s top priority after she’s played, what fuels her before a match? “Before games, I’ll always eat pasta. I lived in Italy for a year, so pasta is one of my favourite things and [living in Italy] really gave me inspiration for different types, rather than just the basic stuff.” Training for a major tournament is no small feat, and combined with nutrition, camp before the tournament will be intense.“Obviously, people are all at different stages of [fitness]; some finished the league a bit earlier, and some played more minutes than others, so it’s about getting on the same page, and then ramping it up. It’ll be running, training, gym, everything you can think of.” Facing disappointment when she was not selected for the Euros team, the fresh Lioness has worked hard to get the call-up.“Last year, with the Euros, it didn’t quite go to plan, so I’m so proud of the season I’ve had. We’ve got our rewards by being selected to represent England at a World Cup,” Manchester-born Zelem divulges. “My first major tournament and I’m so excited.” But waiting for the news as to whether she would be heading to Australia and New Zealand, where the Women’s World Cup is taking place this summer, was nerve-wracking. Zelem didn’t want to miss her shot again. “I was actually at home, waiting,” she says. We knew we were going to get a FaceTime call, so it was an anxious morning for everyone.” Heading to her first World Cup, there are bound to be some nerves. “It is a good thing to feel nervous. You’re out. You’re at a World Cup. It should be a little bit nerve-wracking, playing with and against the best players in the world. Nerves are good. It’s just about channelling them in the right way,” Zelem adds calmly. Zelem is looking forward to being reunited with legendary Lioness, fellow midfielder and Barcelona player, Keira Walsh. “I do love joining up with the girls and playing with everyone, but Keira Walsh is a really good friend of mine and I have known her for about 15 years. We played together at the youth age groups a lot, we have done a lot of training camps in England,” the footballer explains. “She moved, and went from being on the doorstep to a totally different country. So, there’ll be a nice reunion at our first major tournament together.” Of course, there will be some noticeable players missing in Beth Mead and Leah Williamson, as ACL injuries have ravaged teams all over the world this season. “One or two is unlucky, but I think so many is just crazy. It certainly needs to be looked at – whether it’s our training load or the changes in play in minutes. As you see the women’s game rise and grow, the expectations become to play more games and have less recovery,” Zelem notes. It means the Lionesses of the Euros have had a shake-up. The new squad is missing its captain and top scorer, but Zelem and the rest of the team are still dreaming of World Cup victory. Katie Zelem, England Lioness and Manchester United Captain, is the brand ambassador for the healthy recipe box service Green Chef which is all about healthy living, your way.
2023-07-06 17:23
This is the lesser-known symptom of Alzheimer’s that could affect drivers
This is the lesser-known symptom of Alzheimer’s that could affect drivers
As revealed by TV presenter Fiona Phillips this week, anxiety and brain fog could be symptoms of Alzheimer’s disease – but people are being warned of another lesser-known symptom that could affect drivers the most. It comes after the former breakfast TV host, 62, spoke publicly for the first time about her Alzheimer’s disease diagnosis, which she received 18 months ago. Phillips, who is currently taking part in a drug trial that is hoped could revolutionise treatment for the illness, said she wishes to end the stigma surrounding Alzheimer’s. According to the Alzheimer’s Association, one of the symptoms that could be related to the onset of the disease is trouble understanding visual images and spatial relationships. It said: “For some people, having vision problems is a sign of Alzheimer’s. This may lead to difficulty with balance or trouble reading. “They may also have problems judging distance and determining colour or contrast, causing issues with driving.” This is not the same as having vision problems or changes related to cataracts, which is a typical age-related change. Other early signs and symptoms highlighted by the organisation include memory loss that disrupts everyday activities, such as forgetting information that one only recently learned; experiencing challenges in planning or solving problems; having difficulty taking tasks that are usually familiar; and losing track of dates, seasons or the passage of time. People living with Alzheimer’s may also develop new problems with words in speaking or writing, and may have trouble following or joining a conversation. Misplacing objects and losing the ability to go over their steps to find something is also a common sign of early disease, as is poorer judgement and withdrawal from work or social activities. Phillips said she began to realise something was wrong when she developed “crippling anxiety” towards the end of 2021 and initially thought it was related to menopause. She was put on HRT to treat menopause symptoms, which led to some improvement, however, Phillips’ “brain fog remained”, her husband Martin Frizell said. After months of cognitive tests and a lumbar puncture to asses spinal fluid, Phillips was diagnosed with Alzheimer’s disease. She told The Mirror: “This disease has ravaged my family and now it has come for me. And all over the country there are people of all different ages whose lives are being affected by it – it’s heartbreaking. “I just hope I can help find a cure which might make things better for others in the future.” She is taking part in a medical trial at University College Hospital (UCH) for a drug called Miridesap, which is administered three times a day with tiny needles. Scientists hope the drug can slow or even reverse the disease. Phillips added: “There is still an issue with this disease that the public thinks of old people, bending over a stick, talking to themselves. “But I’m still here, getting out and about, meeting friends for coffee, going for dinner with Martin and walking every day.” In 2022, dementia and Alzheimer’s were named by the Office for National Statistics as the leading cause of death in the UK. Last year, they accounted for 65,967 deaths, up from 61,250 the year before. Read More The Barbie press tour has finally rescued Margot Robbie’s red carpet reputation Woman exits plane after tirade about passenger who is ‘not real’: ‘Final Destination vibes’ Fans mistake Jennifer Garner and Ben Affleck’s daughter Violet, 17, for her mother in new photos
2023-07-06 16:24
Disability Pride Month: Motor neurone disease diagnosis spurred us on to get married
Disability Pride Month: Motor neurone disease diagnosis spurred us on to get married
Getting married wasn’t “on the books” for London couple Craig Pollard and Alex Herd for a long time. But that changed when Alex got diagnosed with motor neurone disease (MND) in 2021, aged 30. “We decided to get married as a bit of a consequence of Alex’s diagnosis,” explains Pollard, 35. “It wasn’t something that was on the books for us before, especially as being gay, marriage wasn’t available to us when we were younger, so wasn’t necessarily something we’d aspired to. “But then thinking about the legacy we wanted and how much time we had together, we saw it as a good way of bringing our families together and celebrating something really positive in our life.” MND affects nerves in the brain and spinal cord which send signals to muscles. There is currently no cure, so as muscle loss gets worse over time – affecting movement, speech, swallowing and breathing – it eventually leads to death. It’s uncommon and mostly affects people in their 60s and 70s, although as Herd’s diagnosis shows, MND can occur in younger adults too. The charity Challenging MND, which helps people with MND, has the ‘opportunity to create amazing memories’, funded the couple’s big day last year – a fabulous festival-inspired party officiated by drag queen Just May from RuPaul’s Drag Race UK Season 4. They had already been together for a decade, so the wedding was a “celebration of all the things we’ve enjoyed together over the last 10 years”, Pollard notes (plus “lots of glitter and sparkle – it was perfect”). It was also the last time Herd went a full day without using a wheelchair. “So it was the very last moment we possibly could have done that,” adds Herd, now 32. “And we can look back at that as a really special day.” He first started noticing symptoms in early 2021 – muscle twitching then weakness in his hands and arms, before his legs became increasingly affected. Herd used a manual wheelchair for a while but recently switched to an electric one. “That’s changed my life quite a lot,” says Herd. “While I was in the manual wheelchair and Craig was pushing around, I sort of felt like I didn’t really exist anymore, because everyone would interact with him, and I wasn’t responsible for where I was. But now I’m in control of my movement, I feel like I’m more interacting with people myself.” The diagnosis has been challenging on multiple levels, individually and as a couple. MND doesn’t present with exactly the same patterns for everyone – so there is no guidebook as such, and navigating support services relies on a lot of self-advocating. Things such as specialist physiotherapy and occupational therapy can be helpful, along with home adaptations. “Having MND, you have to get used to things changing,” says Herd. “I mean, I can’t necessarily relate at this point to someone who’s been in their wheelchair for their whole life, but because things keep changing, you can’t really get used to it properly. So it’s very difficult for me to kind of keep hold of my identity.” In a recent survey, Challenging MND found 63% of people living with the MND had felt marginalised or ‘othered’ because of their condition, while 51% felt others see MND as their identity. In addition, 80% said they felt isolated, and 69% worry about being a burden to their family. Feeling ‘othered’ is something Alex found himself thinking about while attending Pride London recently. “It’s almost more like something I’m doing, than something other people are doing – because I’m seeing people doing what I would’ve been doing a year ago, it’s still fairly fresh for me, so I’m still comparing the before and after,” he reflects. “At Pride, lots of people get to see themselves represented in the crowds, and that’s nice. But then I realised how much more of a minority people in wheelchairs are. It made us realise how different our situation is now, our priorities and expectations in general.” Music has been an important way for him to stay connected with his identity. “I’ve been making music for over 10 years, so it’s nice I’m still able to do that. I think as much as possible, people in a situation like this need to try and keep doing the things that made them happy before,” he says. While he can no longer play his guitar, Herd made voice recordings to use an instrument and creates tracks on his computer, using foot pedals as he can no longer click the mouse. Since his diagnosis, he’s actually been finishing a lot more songs. “I have less distractions now!” Herd quips. “But using music as a communication tool, that’s definitely become more important to me.” Challenging MND also supported the couple with a trip to Eurovision – “which was really touching and we made great memories”, says Pollard. They’re also grateful to support from the Motor Neurone Disease Association, who provides a local area liaison, and their local St Christopher’s Hospice has been “really helpful”. These things make a huge difference. “Something I’m very conscious of as an able-bodied person is watching Alex have to come to terms with first of all being disabled, then being visibly disabled, and then being disabled in public – there’s been a lot of different elements we’ve had to really tackle,” Pollard reflects, citing navigating public transport as one of the main everyday challenges. There’s an emotional toll too. “My energy levels are a lot lower than they used to be, and my capacity for stress. I feel like I already have this much higher baseline of anxiety about various things, so it feels much easier to become overwhelmed,” says Herd. “I think the only thing we can really do is just try and focus on the next thing, rather than worrying about everything.” As members of the LGBTQ+ community, there are sometimes other nuances to their experiences. They’ve noticed LGBTQ+ events are doing well with accessibility, but representation can be a more subtle matter. “There’s definitely an element of the community who are very mindful of others and very empathetic, which I think has been where I’ve learned a lot about different people’s experiences in my life,” says Pollard. “But when it comes to the overall society of the community, I think there’s still a large proportion of it based on image, based around being cool and trendy. So it’s quite easy for people with accessible requirements to be kind of ignored in that space.” As for their experiences in public, Craig says: “We have struggled to feel like we can take up space. First of all being LGBT, we often don’t feel that safe in certain spaces, public transport we’ve had trouble on once or twice in the past, so you’re always a bit uneasy. With moving into being more visibly disabled and needing more accessible requirements, that’s something we’ve to discuss and manage.” Thanks to Challenging MND, the couple are banking up the joyful times. “They offered to support our wedding, which was really special, and without them we probably wouldn’t have had it,” says Pollard. “That isn’t just a memory for us, it’s a memory for our families and friends too. It was really special.” Challenging MND aims to support and empower those living with MND to create lasting memories for themselves and their families. To date they’ve granted in excess of £1.1million and supported over 100 families.
2023-07-06 16:22
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