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Many people with Huntington’s disease are being turned away from traditional mental health support, a charity has claimed as it called for more to be done to help people with the condition. Some mental health services have told patients that they do not have the specialist care needed, leading to the Huntington’s Disease Association calling for better help and support for people living with the disease. Huntington’s disease is a condition that stops parts of the brain working properly over time and can lead to problems with movement, cognition (perception, awareness, thinking, judgment) and mental health. Most people with the inherited condition will start to show symptoms between the ages of 30 and 50 and it gradually gets worse for around 10 to 25 years until the person dies. During all this time, my mental health was worsening. I’d seen my uncle commit suicide a few years before after his diagnosis and him not receiving the correct support and I was at a similar point Daniel Johnston There is no cure for Huntington’s disease or any way to stop it getting worse. A small new poll of 105 people with the condition, shared with the PA news agency, found that 85% had attempted to access community mental health services. But among this group, 56% claimed they had been denied access to care, the Huntington’s Disease Association said. Daniel Johnston, from Horam, East Sussex, said his local mental health service “didn’t know” where to refer him. The 41-year-old father of two said: “When I tested positive for Huntington’s, there was no specific pathway from that point for any mental health support. “I was confused, upset and angry about the diagnosis. I didn’t, and still don’t, fully understand my feelings of confusion and anger. “I wasn’t referred to a professional psychologist or anyone who knows how to support someone with a life-changing diagnosis such as Huntington’s. “During all this time, my mental health was worsening. I’d seen my uncle commit suicide a few years before after his diagnosis and him not receiving the correct support and I was at a similar point. “It was only when I explained to my consultant in our six-monthly appointment earlier this year the extent of my thoughts that he contacted the crisis team for me, and they began a course of daily calls for two weeks. “From this point onwards it’s been getting better, but I feel so sad for others who slip through the net so easily. “It’s as if people get afraid when you mention Huntington’s and there’s confusion around treating Huntington’s and treating mental health. “I’m not surprised by the amount of people being denied access to mental health support services due to having Huntington’s – I have been one of those people and it’s really scary.” The charity said hurdles often occur for patients after they have been referred by their GP for mental health support. Local mental health teams have told patients that Huntington’s “doesn’t fall under the remit of what they’re able to provide treatment for”. The charity has launched a new campaign, Mindful of Huntington’s, to raise awareness of the cognitive impairment symptoms of the disease, and has called for greater access to mental health support. Cath Stanley, chief executive of the Huntington’s Disease Association, said: “Many people think of Huntington’s as a disease which impacts movement, but that is only half the story, and the non-physical symptoms are often overlooked. “At the Huntington’s Disease Association, we find people will most commonly be referred to mental health services due to cognitive symptoms such as irritability and aggression. “Throughout May, we will be focusing on these cognitive symptoms and the life-changing impact they can have. “The stark findings we’re announcing can’t be ignored – people are asking for much-needed mental health support, being turned away, and their health is deteriorating further. It is disappointing but not surprising to see that there’s still a lot of misunderstanding around Huntington’s.” To find out more visit: www.hda.org.uk Read More Charity boss speaks out over ‘traumatic’ encounter with royal aide Ukraine war’s heaviest fight rages in east - follow live Scottish first minister Yousaf calls cost of coronation ‘uncomfortable’ King Charles and other royals return to work after coronation Prince Harry’s ghostwriter opens up about harassment after ‘Spare’

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Sebastian Vettel refused to rule out a return to F1 when questioned about the likelihood of a dramatic comeback. The four-time world champion retired at the end of the 2022 season after two years of frustration at Aston Martin. The finale to his stay in the sport was a far-cry from the glory years, namely with Red Bull with four straight titles from 2010-2013, as well as championship tilts with Ferrari. But Vettel, 36, admits he “can’t exclude” the prospect of a return in the future, when asked by Sky F1’s Martin Brundle whether he would return to the grid in a similar manner to the likes of Fernando Alonso and Kimi Raikkonen. "I can’t say no, because that you don’t know," the German said. "I think it’s something that if you asked all of them, probably some of them would have said ‘no’. And some of them I don’t know, but in the end all of them came back, so I can’t exclude it. "It probably will depend much on when, and obviously it’s not endless, because 36 is not like, ‘yeah in 10 years’ time’. "Maybe I think about it then time has passed but it will depend on the challenge, whatever, but it’s not in my head right now.” A 53-time race winner, Vettel made his F1 debut in 2007 before claiming his first victory at Monza with Toro Rosso in 2008. Yet his last three seasons in the sport – one with Ferrari, two with Aston Martin – saw him finish 13th, 12th and 12th again in the Driver Standings, though did see him take on roles as a climate activist and LGBTQ+ rights campaigner. "I’m enjoying the sort of outlook of the challenge of what to do next,” Vettel added. “It will be the way I see it, the biggest challenge for any racing driver and the biggest challenge for any sportsman, sportswoman, what do you do after? "Because naturally you will be like 30-35, 40-45 - depending on your sport and discipline. And then what? "There’s a lot of life left and life can be great even though you’re not racing, you know, the absolute limit in the fastest car in the world, but you can still do lots of great things that give you great pleasure." Vettel was speaking to Sky ahead of this weekend’s Singapore Grand Prix, where the German won his final race of his F1 career in 2019. Read More Farewell Sebastian Vettel, a four-time F1 champion who stood for something bigger than racing How does Max Verstappen’s win-streak compare to fellow record-holder Sebastian Vettel’s? Alfa Romeo confirm driver line-up for 2024 F1 season F1 Singapore Grand Prix: When is practice on Friday at Marina Bay? Red Bull chief apologises to Sergio Perez over ‘offensive remark’

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