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9 arthritis myths we all need to stop believing
Many people assume arthritis is just an ‘old person’s’ disease, and an inevitable part of getting older. Try telling that to the parents of toddlers impacted by the condition, or the 20-somethings living with it. The suggestion that it only troubles the elderly is one of many myths associated with arthritis, which affects around 10 million people in the UK. “One in six people live with the pain, fatigue, and disability arthritis can cause. The impact can be huge, affecting the ability to work, care for family, move free from pain and live independently,” says Deborah Alsina, chief executive at the arthritis support charity Versus Arthritis, speaking to mark Rheumatoid Arthritis Awareness Week (September 11–17). “There are many misconceptions when it comes to understanding arthritis, but by shining a light on the reality of living with arthritis day in, day out, we can help grow understanding and inspire people to take action.” Dr Amara Ezeonyeji, consultant rheumatologist from The Lister Hospital in London (part of HCA Healthcare UK), adds: “Arthritis is a general term that refers to a group of over 100 different types of inflammatory joint diseases that affect the musculoskeletal system. The most common symptom of arthritis is joint pain, but it can also cause stiffness, swelling, and decreased joint mobility.” She says the most common form of arthritis is osteoarthritis (OA), often associated with wear and tear of the joints. Other common types are rheumatoid arthritis (RA), an autoimmune disease that primarily affects the joints; psoriatic arthritis, a type of arthritis associated with the skin condition psoriasis; ankylosing spondylitis which primarily affects the spine and can lead to fusion of the vertebrae; and gout, which is caused by the accumulation of uric acid crystals in the joints and often affects the big toe. “There are several myths about arthritis that are often repeated. It’s important to dispel these to promote an accurate understanding of arthritis, and to encourage those affected to seek appropriate medical care and support from a rheumatologist,” Ezeonyeji adds. Here, Alsina and Ezeonyeji debunk nine common arthritis myths… Myth 1: Arthritis only affects the elderly While it is more common in older adults, arthritis can affect people of all ages, including children and young adults. Myth 2: Cracking your knuckles causes arthritisPeople who crack their knuckles will sometimes be wrongly warned that it’ll bring on arthritis, but Ezeonyeji explains: “There’s no scientific evidence linking knuckle cracking to the development of arthritis. When people crack their knuckles, they experience a release of pressure in the joints and relaxation in the surrounding muscles. It can make the joint feel more mobile and is unlikely to cause arthritis or other problems.” Myth 3: It’s just wear and tearAlsina says one of the most damaging myths is that any form of arthritis is just ‘wear and tear’. “Osteoarthritis is the most common type of arthritis and will affect half of us by age 70. But it isn’t an inevitable part of ageing – your joints are not like car tyres destined to wear down and be replaced. They are made of complex living tissue that our bodies constantly repair and maintain, and osteoarthritis occurs when our bodies can no longer do this effectively,” she says. “Our joints get stronger the more we use them, so keeping physically active and maintaining a healthy weight can help keep osteoarthritis under control.” Myth 4: Cold damp weather causes arthritisAlthough cold and damp weather can sometimes make arthritic joints feel worse, it’s definitely not why arthritis starts. Ezeonyeji explains: “Weather can influence joint discomfort, but it doesn’t cause arthritis. Arthritis is primarily a result of genetic and environmental factors.” Myth 5: Exercise makes arthritis worse People with arthritis can often find it hard to maintain regular physical activity, but a lack of movement can actually increase symptoms such as stiffness and pain, warns Alsina. “Building activity into your daily routine can help improve this, because using your joints builds muscle strength and improves the blood supply, all of which can ease symptoms and keep joints in better shape for longer.” She says different activities will suit different people, but adds: “Swimming and cycling are great exercises to try, as they get the body moving without putting pressure on painful joints.” It’s always a good idea to seek advice from a healthcare specialist if you are unsure what types of exercise will be suitable for you. Myth 6: Arthritis is just joint pain – it’s not serious Ezeonyeji says that while arthritis can be debilitating and lead to a reduced quality of life, it can get even more serious than that for some people. “Rheumatoid arthritis, for instance, is an autoimmune disease that can affect various organs and tissues in addition to joints,” she points out. Myth 7: There’s no treatment for arthritis While there’s no cure for arthritis, Ezeonyeji says there are many effective treatments for managing the disease, including pain relief medication, physiotherapy, disease modifying agents and biological drugs for inflammatory arthritis, plus joint surgery in some cases. “It’s also recommended that people with arthritis modify their lifestyle and try to lose weight [if they need to], follow a healthy balanced diet, exercise regularly and stop smoking,” she adds. Myth 8: Miracle cures can make arthritis disappear Although some people with arthritis believe copper or magnetic bracelets ease symptoms, Alsina says studies show no evidence to support this. “It’s the same with lots of supplements, and some of these are really pricey,” she observes. “Interestingly though, placebos can be very effective and continue to work even if you know it’s a placebo, so if you find these helpful there’s no reason to stop.” Myth 9: Certain foods definitely help/hinder arthritisThere are claims that foods like tomatoes can cause arthritis flares, and other foodstuff like cider vinegar may help it. Alsina says: “Sadly there’s no good evidence that there are specific foods you should avoid or have more of. But if you do find things that are helpful or make your symptoms worse, then listen to your body.” Read More Charity boss speaks out over ‘traumatic’ encounter with royal aide Ukraine war’s heaviest fight rages in east - follow live Prince Harry spotted at Windsor Castle on anniversary of Queen’s death How the weather can change the way you dream All the times Kate has channelled the late Queen’s style since her death
2023-09-11 15:15
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Lewis Hamilton and Mercedes are the biggest losers from Imola Grand Prix cancellation
They’ve been talking about it for weeks. In fact since the season-opening Bahrain Grand Prix at the beginning of March, Mercedes have pinpointed this weekend in Imola as a new beginning not only this season, but in this new phase of ground-effect regulations first brought in last year. Toto Wolff has made no secret of F1’s return to traditional European circuits as marking a line in the sand for his team’s prospects in 2023, with Lewis Hamilton and George Russell waiting eagerly in the cockpit to see how far they can reduce the hefty gap – 128 points in the constructors’ standings – to Red Bull out in front. News on Wednesday then of the cancellation of this weekend’s Emilia Romagna Grand Prix comes as a bitter blow to their development plans. In the wider scheme of things, though, Mercedes’ fortunes are very much not a priority. The swiftness of those at Formula 1 on the ground in Imola has not gone unnoticed in the past few days. F1 made the right call to cancel given the severe flooding in the region, even if as expected the race cannot be rescheduled this year. For a sporting entity and a governing body, the FIA, who have repeatedly blundered in recent months, this time the communication between executives, teams and the media was clear throughout in an ever-changing situation. As opposed to Australia in 2020 amid the coronavirus outbreak, as well as Spa in 2021 with heavy rain eventually rendering racing redundant, the call here was decisive while matters of far more importance to local bodies in northern Italy, not least the emergency services, take greater hold. However, given the sheer anticipation at Mercedes for an upgrade package which was set to include a trio of new sidepods, floor and front suspension, this delay is far from ideal. As recently as the weekend, engineering director Andrew Shovlin said: “We took some decisions on how we develop the car – how the car works aerodynamically, how we shape the characteristics of the car, how it is in terms of handling. "What we are going to be bringing to the track in Imola is the first step of that work. This takes quite a long time to develop in the wind tunnel, you can’t just do these things overnight. But the Imola package is the first step in that direction.” At Imola, with three practice sessions, qualifying and a 63-lap race on a traditional European circuit with 19 turns – even if rain was forecast – the technicians and engineers at Mercedes would have gathered swathes of useful data regarding the W14’s performance, consistency and raw speed. An immediate evaluation would have been collated: have the upgrades made the car quicker? But it is no longer the Imola package. Rather unsatisfactorily, it is now the Monaco package. Out of all 23 race circuits on the 2023 schedule, the twisty turns of the principality are perhaps the last place upgrades would want to be tested first time out. The unique dimensions of the Monaco street circuit are out of quilter with the vast majority of tracks on the calendar, meaning upgrades designed to improve the quality of the car over the course of a season may not have a positive impact in Monaco. Thankfully, the race that follows is in Barcelona – a track which before the pandemic was traditionally used for testing. A more appropriate analysis can be ascertained during that weekend in Spain. While Ferrari were also expected to bring improvements this weekend, the focus was undeniably on the Mercedes garage. Now, that anticipation and development plan will have to be re-routed. Hamilton stated after the Azerbaijan Grand Prix in April that he was “counting down the days” until the anticipated upgrades at Imola: the scene of his ultimate humiliation when he was lapped by old foe Max Verstappen in last year’s race. Unfortunately for the seven-time world champion, he will have to wait that little bit longer. Read More F1 Imola Grand Prix cancelled F1 Grand Prix – live: Lewis Hamilton reacts after Imola race cancelled Will Imola Grand Prix be rescheduled? Where are Mercedes and Ferrari? Frankly, you don’t want to hear the answer ‘Nasty piece of work’: Lewis Hamilton’s Mercedes slammed by Toto Wolff Lewis Hamilton would be taking gamble by leaving Mercedes, says former rival
2023-05-17 23:20
Mother diagnosed with cystic fibrosis, anorexia and incurable cancer says she ‘doesn’t feel afraid of dying any more’
A mother who was diagnosed with cystic fibrosis (CF) just days before her 30th birthday and later told she has myeloma – an incurable type of blood cancer – said she has “taught (herself) a whole new script for death” and, rather than feeling afraid, she feels “empowered” by what she has overcome. Ellie Allman, 42, who lives in Hadleigh, Suffolk, with her husband Steve, 44, a charity consultant, and son Harvey, 13, used to work as a specialist adviser for vulnerable young people but she had to retire, aged 35, after being diagnosed with CF aged 29. CF is an inherited condition that causes sticky mucus to build up in the lungs and digestive system, and while Ellie did not “feel anything initially” when she received her diagnosis, she “struggled mentally” later on and ended up developing anorexia, as she felt she had “no control over anything”. “I was off work, I was frustrated, I was angry, my body didn’t feel right CF-wise – I had no energy, I couldn’t do what I wanted,” Ellie told PA Real Life. “I was spending my days weighing everything I ate and just constantly doing the maths. “It seems ridiculous now, but it made so much sense at the time to that very determined person who was just clinging on to any form of normal life.” After becoming eligible to take Kaftrio in June 2021, a medication which significantly improves lung function, she noticed a vast improvement in her health. However, in less than a year, Ellie “randomly” became very unwell, and this led to the devastating news she has incurable cancer. After this, she underwent four months of chemotherapy alongside immunotherapy, followed by a stem cell transplant to replace the damaged blood cells with healthy ones in March 2023, and then a further two months of consolidation chemotherapy which included immunotherapy. She lost her hair, felt “exhausted” and anxious, and experienced pain “worse than labour contractions” from the “harvest of (her) stem cells” before the transplant, but she knew the pain would not last forever – and she said the support she has received from her husband, son, doctors, consultants and the charity, Ending Life’s Taboo, has been invaluable. She is now in remission and undergoing maintenance chemotherapy, and while she has experienced feelings of anger and resentment, she knows she can handle anything that her health throws at her. “I’ve taught myself a whole new script for death; I find it difficult to live with failing health, but I don’t feel afraid of dying any more,” she said. “We don’t get a choice, that’s just how it goes, but I think having the right people around you is so important. “I think it’s really natural when you’re young, or when you’re scared, to unintentionally isolate yourself or become withdrawn, and that has never ever worked for me. “I have to work hard not to lose myself within these diagnoses, and I have to remind myself that I’m still the person I was before my diagnosis.” During her childhood, Ellie developed whooping cough “in succession” – a bacterial infection of the lungs and breathing tubes – along with other chest infections and bouts of flu, but she was otherwise fit and healthy and used to run, swim, and was even a sports captain at school. She remembers certain periods of her life where she felt extremely fatigued and achy, but since her mother preferred alternative and natural medicines, Ellie rarely visited the doctor – and given she had “coughed (her) entire life”, she was “dismissive” of her symptoms. Later on, during her pregnancy, Ellie developed repeated chest infections, experienced difficulties with her speech, and could not clear her throat, but it was not until after she gave birth to her son Harvey, now 13, in 2010 that she underwent further testing. In February 2011, just days before her 30th birthday, it was confirmed she has cystic fibrosis – and, at first, she said she was “not willing to make room for CF in (her) life”. “You’ve lived your whole life not ill and then suddenly there’s this label,” Ellie said. “I didn’t feel anything initially, but I struggled with it later on, mentally.” According to the charity Cystic Fibrosis Trust, CF can be diagnosed during a new-born screening, which is carried out as part of the heel-prick test that all babies in the UK receive, but since this was only introduced nationally in 2007, this was not available for Ellie. Moreover, Ellie’s rare genotype made her CF even more difficult to diagnose. She underwent treatment in the form of intravenous (IV) antibiotics and physiotherapy sessions and noticed an improvement in her health, but when she started experiencing difficulties with her digestion – caused by a build-up of thick mucus – she started to feel “really frustrated with the world”. The side effects of the prescribed drugs also meant she could not conceive again – and while she is extremely grateful for her family, this had a “massive” impact on Ellie at the time. Ellie was then told she needed to take the medication Creon with food, which aids digestion, except for with fruits and vegetables, and this led to her developing anorexia in 2016. She said her head would “scream at her” but she could not “free (herself)” from negative thoughts that would body-shame her. “I had no control over anything, it was the perfect storm in a way; the perfect circumstances for me to use that as a control mechanism,” she said. Ellie became very weak after her “dramatic weight loss” of more than four-and-a-half stone, but after realising she needed to prioritise her health and time with her family, she underwent treatment and therapy to “reframe” her negative thoughts, so they were no longer a “dominant” force in her life. In June 2021, Ellie started taking Kaftrio, and she described it as “a miracle drug”, but approximately 11 months later, she began experiencing a “burning pain in (her) chest”. This led to the heart-breaking news in July 2022 that she has myeloma – a type of blood cancer, which is incurable – and the pain caused by treatments was unimaginable at times. She said: “Since Kaftrio thins the mucus, the high-dose chemo just ripped through the mucus in my throat, so I couldn’t swallow; the pain was insane. “My throat was blistered and ulcerated, so I couldn’t eat and I was put on to a feeding tube. “But I knew I had to get through it because if I stay in remission for two years, I could have a second transplant in future.” Ellie is now in remission and is undergoing maintenance chemotherapy, which she said “feels like a breeze in comparison”, and she is continuing to take Kaftrio, meaning the symptoms of her CF have “massively reduced” and she can enjoy the “simple things in life again”. She likes going on dog walks, meeting friends for a drink, and spending time with her “favourite people”, as that “makes everything else feel better” – and looking back now, she feels “empowered” that she has handled her CF, anorexia, cancer diagnosis, and treatments. While myeloma is incurable and Ellie has had some “existential thoughts”, she said processing what may happen in life has been “freeing” and she has always held on to hope. She has applied to become a magistrate and hopes another “miracle drug” like Kaftrio may become available during her lifetime to treat the cancer. She added: “Even in the most testing of times, every time I have found something positive to focus on or something to hope for and that has kept me going.” Ellie’s cancer is not linked to CF. To find out more information, visit: www.cysticfibrosis.org.uk/what-is-cystic-fibrosis/how-does-cystic-fibrosis-affect-the-body/cystic-fibrosis-complications/cancer Read More Dancer who has Tourette’s tics says Lewis Capaldi’s Glastonbury performance left her ‘speechless’ ‘Long Covid has taken away my ability to eat food or urinate - I don’t recognise myself anymore’ How to lower your blood sugar levels, as new research reveals heart disease link Groundbreaking cystic fibrosis drug made seven-year-old girl feel better ‘within hours’
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