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More must be done to get black, Asian and ethnic minority people to participate in breast cancer trials, experts have said, as they warned that people from these backgrounds have been under-represented in previous studies. Medics said that they want research into the disease to be “relevant to people we see in the clinic”. Experts said that there is a “broad misperception” that black women “don’t suffer as much from breast cancer” which can result in the perception that “cancer is a white person’s disease”. If I hadn’t gone on the trial at The Christie, I wouldn’t be here today Jasmin David This is despite the fact that previous studies have found that black women are more likely to die from breast cancer compared to their white peers. They are also more likely to develop more aggressive cancer and be diagnosed when their cancer is at a more advanced stage. It comes as the NHS Race and Health Observatory launched a new campaign alongside Macmillan Cancer Support to improve diversity in breast cancer clinical trials. The project, which is being supported by Roche, aims to raise awareness of the lack of diversity in clinical studies, improve communications and provide longer term support to patients. Specialist nurses will be provided at two major cancer hubs – Bart’s Health NHS Trust in London and The Christie NHS Foundation Trust in Manchester – to help guide patients through the process. Men, who account for 1% of breast cancer patients in the UK, are also being included. The NHS Race and Health Observatory said that there are “multiple barriers” around the recruitment, communication and retention of black, Asian and ethnic minority patients in clinical trials. It said that data show that people from an ethnic minority background are poorly under-represented in many clinical trials. And the Caribbean African Health Network said that there has been a “disengagement” in research “as a result of mistrust”. Jasmin David, a 53-year-old breast cancer patient from Fallowfield in south Manchester, took part in a clinical trial which saved her life and is encouraging others to do the same. Two years after her initial diagnosis and treatment at The Christie she was told that the cancer had come back and had spread to her lungs, lymph nodes and chest bone. The mother-of-two was told she had less than a year to live but was also offered the opportunity to take part in a clinical trial at the National Institute for Health and Care Research Manchester Clinical Research Facility. Ms David is now cancer-free. “If I hadn’t gone on the trial at The Christie, I wouldn’t be here today,” she said. “I have two children and now I get to be there for them as they grow up. “Research gave me a second chance and life and I’m relishing every second of it. “I want everyone, no matter their ethnicity, to have equal access to clinical trials, so I’m glad that this important piece of work is being done. I hope that by sharing my story I can inspire more women like me to come forward and take part in clinical trials.” Dr Habib Naqvi, chief executive of the NHS Race and Health Observatory, said: “We are pleased to announce this partnership and our joint commitment to ensuring inclusion and representation in future breast cancer trials. “We believe that when targeted, culturally sensitive interventions and communications are put in place, under-represented groups can be successfully recruited into clinical trials.” He added: “There is a broad misperception that black women don’t suffer as much from breast cancer or it does not run in their family history. This can result in the perception that cancer is a white person’s disease. “We want this pilot to encourage women at risk, those already diagnosed and individuals undergoing post treatment to come forward and share their experiences and get the information needed.” Professor Richard Simcock, chief medical officer at Macmillan Cancer Support, added: “As a Breast Cancer Oncologist I want to know that research is relevant to the people we see in clinic. Historically that has not been the case. “I’m delighted that Macmillan can support this project to ensure that future evidence from clinical trials is representative and inclusive.” Charles Kwaku-Odoi, chief executive of the Caribbean African Health Network, said: “Across the black community there is an undoubted legacy of disengagement in research and most certainly clinical trials that stems back decades as a result of mistrust. “This has not served us well because it leads to a lack of appropriate interventions that perpetuate the grave health inequalities in breast cancer care. “This partnership approach to build solutions to improve engagement in clinical trials in breast cancer treatment and care is very much welcomed. We are looking forward to working in a collaborative way to build trust, improve awareness and ensure that barriers surrounding access to clinical trials are addressed.” Read More Charity boss speaks out over ‘traumatic’ encounter with royal aide Ukraine war’s heaviest fight rages in east - follow live 10 slick ways to kit out your student digs 4 essential officecore trends to update your work wardrobe Sickle Cell Awareness Month: What is sickle cell disease and how do you know if you have it?

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Amy Dowden has shared her gratitude for the kind words she’s received from fans after revealing more about her cancer diagnosis. The Strictly Come Dancing professional dancer, 32, told fans she’d been diagnosed with breast cancer in May. She underwent a full mastectomy to treat the disease shortly after. Dowden had been waiting to discover what further treatment she’d need, having noted that chemotherapy would affect whether she’d compete on this year’s Strictly. In an Instagram Live chat with breast cancer survivor and Paralympic gold medallist Erin Kennedy for the charity CoppaFeel! on Friday (21 July), Dowden spoke out about being told she’d need chemotherapy after more tumours were discovered following her mastectomy. “For me my journey everything changed,” she explained. “I was originally going to have a lumpectomy, radiotherapy and hormone treatment. But then, after my MRI, they found another tumour so then it changed into a mastectomy and then, after my mastectomy, unfortunately, they found even more tumours. “They found another type of cancer and then they told me I needed chemo – for me that was a massive blow,” she continued. “It wasn’t in the plan, originally – and I know the plan you can’t get fixated on.” Dowden admitted that she had reservations about beginning chemotherapy as she feared it would interfere with her dance practice. “For me, straightaway, it was my dancing – like, you can take away my boob but you can’t take my dancing away from me and that’s what I get really upset about,” she recalled. Though Dowden had hoped to return to Strictly this year, the effects of the chemotherapy mean that she will not return in a competitive capacity for the forthcoming season. She added: “This year, it means I’m not going to be able to dance with a celebrity on Strictly, but I’m in such regular contact with the team – the BBC have just been utterly incredible.” After the live broadcast ended, the performer shared an additional message on her Instagram stories thanking everyone for the “love and support” that has been directed her way. She wrote: “I’ll tackle this next step the best I can and very blessed to have the love and support of my family and friends along with you guys. “The rest of the year looked very different to what was planned but hopefully I’ll enter 2024 cancer free and I’ll never take anything for granted and promise to live life to the full.” Dowden joined Strictly in 2017, and has competed in every series since, reaching the final in 2019 with kids’ TV presenter Karim Zeroual. Read More Tim Shaddock rescue: Ben Fogle offers to pay for Australian sailor and dog to be reunited after emotional separation Father sparks outrage for calling son ‘spoiled’ after 23-year-old said he can’t throw wedding for under $7,000 Fans defend Prince Harry and Meghan Markle amid breakup rumours Researchers warn after 25 types of toxic flame retardant found in human breast milk Mother calls out ‘double standard’ after husband is praised for doing ‘bare minimum’ Couple praised after sharing intimate bathroom TikTok: ‘The reality of birth’