
Concern over Huntington’s patients ‘turned away’ from mental health support
Many people with Huntington’s disease are being turned away from traditional mental health support, a charity has claimed as it called for more to be done to help people with the condition. Some mental health services have told patients that they do not have the specialist care needed, leading to the Huntington’s Disease Association calling for better help and support for people living with the disease. Huntington’s disease is a condition that stops parts of the brain working properly over time and can lead to problems with movement, cognition (perception, awareness, thinking, judgment) and mental health. Most people with the inherited condition will start to show symptoms between the ages of 30 and 50 and it gradually gets worse for around 10 to 25 years until the person dies. During all this time, my mental health was worsening. I’d seen my uncle commit suicide a few years before after his diagnosis and him not receiving the correct support and I was at a similar point Daniel Johnston There is no cure for Huntington’s disease or any way to stop it getting worse. A small new poll of 105 people with the condition, shared with the PA news agency, found that 85% had attempted to access community mental health services. But among this group, 56% claimed they had been denied access to care, the Huntington’s Disease Association said. Daniel Johnston, from Horam, East Sussex, said his local mental health service “didn’t know” where to refer him. The 41-year-old father of two said: “When I tested positive for Huntington’s, there was no specific pathway from that point for any mental health support. “I was confused, upset and angry about the diagnosis. I didn’t, and still don’t, fully understand my feelings of confusion and anger. “I wasn’t referred to a professional psychologist or anyone who knows how to support someone with a life-changing diagnosis such as Huntington’s. “During all this time, my mental health was worsening. I’d seen my uncle commit suicide a few years before after his diagnosis and him not receiving the correct support and I was at a similar point. “It was only when I explained to my consultant in our six-monthly appointment earlier this year the extent of my thoughts that he contacted the crisis team for me, and they began a course of daily calls for two weeks. “From this point onwards it’s been getting better, but I feel so sad for others who slip through the net so easily. “It’s as if people get afraid when you mention Huntington’s and there’s confusion around treating Huntington’s and treating mental health. “I’m not surprised by the amount of people being denied access to mental health support services due to having Huntington’s – I have been one of those people and it’s really scary.” The charity said hurdles often occur for patients after they have been referred by their GP for mental health support. Local mental health teams have told patients that Huntington’s “doesn’t fall under the remit of what they’re able to provide treatment for”. The charity has launched a new campaign, Mindful of Huntington’s, to raise awareness of the cognitive impairment symptoms of the disease, and has called for greater access to mental health support. Cath Stanley, chief executive of the Huntington’s Disease Association, said: “Many people think of Huntington’s as a disease which impacts movement, but that is only half the story, and the non-physical symptoms are often overlooked. “At the Huntington’s Disease Association, we find people will most commonly be referred to mental health services due to cognitive symptoms such as irritability and aggression. “Throughout May, we will be focusing on these cognitive symptoms and the life-changing impact they can have. “The stark findings we’re announcing can’t be ignored – people are asking for much-needed mental health support, being turned away, and their health is deteriorating further. It is disappointing but not surprising to see that there’s still a lot of misunderstanding around Huntington’s.” To find out more visit: www.hda.org.uk Read More Charity boss speaks out over ‘traumatic’ encounter with royal aide Ukraine war’s heaviest fight rages in east - follow live Scottish first minister Yousaf calls cost of coronation ‘uncomfortable’ King Charles and other royals return to work after coronation Prince Harry’s ghostwriter opens up about harassment after ‘Spare’
2023-05-09 13:51

Michigan man banned from Yellowstone National Park and facing federal charges after traveling off-trail in a thermal area while under influence
A Yellowstone National Park visitor who was allegedly under the influence as he traveled off-trail in one of the park's thermal areas has been banned from the park as he faces federal criminal charges in the incident, prosecutors announced.
2023-08-25 11:15

EU names Apple, Meta, Microsoft among six 'gatekeepers' facing strict DMA guidelines
On Wednesday, the European Commission designated six "gatekeepers" under the Digital Markets Act: Alphabet, Amazon,
2023-09-07 02:59

Federal assistance sought for northeastern vineyards, orchards hit by late frost
Vineyards and apple orchards across the Northeast are still gauging damage from a late-season frost in May that wiped out a third to most of the crop for some growers who say it's the worst frost damage they've ever seen
2023-06-14 13:23

Why October is Breast Cancer Awareness Month - and why we wear pink ribbons
Although people typically associate the month of October with spooky season and the beginning of fall foliage, the month is also known as Breast Cancer Awareness Month. Breast Cancer Awareness Month dates back to 1985, when the American Cancer Society picked one week in October and teamed up with the pharmaceutical division of Imperial Chemical Industries – now part of AstraZeneca, which has worked to develop medicines for breast cancer treatment. The initial goal for the week-long event was to raise awareness towards breast cancer screenings and mammograms. First Lady Betty Ford was diagnosed with breast cancer when her husband, former US president Gerald Ford, was in office. As a breast cancer survivor, she initially helped bring attention to the disease during the week-long event. Over the years, the original week transformed into a month-long event. The goals for Breast Cancer Awareness Month have also evolved over time, such as supporting people diagnosed with breast cancer and metastatic breast cancer, educating people about breast cancer risk factors, stressing the importance of regular screening starting at age 40, and fundraising for breast cancer research. However, the well-known pink ribbon associated with Breast Cancer Awareness Month wasn’t introduced until the 1990s. The inspiration for the ribbon dates all the way back to 1979, when the wife of a hostage who had been taken in Iran tied yellow ribbons around the trees in her front yard as a symbol of her desire to see her husband return home safely. Ribbons were also used years later during the AIDS epidemic, when activists made bright red ribbons to represent those affected by AIDS. The AIDS ribbon was made mainstream after the 1991 Tony Awards, when actor Jeremy Irons was the first to publicly wear the pinned ribbon with a singular loop while hosting the awards show. A woman named Charlotte Haley is attributed with the creation of the Breast Cancer Awareness ribbon, as she was the granddaughter, sister, and mother of women who have all battled breast cancer. Initially, she designed the breast cancer ribbon to be peach-coloured instead of pink. With each ribbon, she passed out a card that read: “The National Cancer Institute annual budget is $1.8 billion, only five per cent goes for cancer prevention. Help us wake up our legislators and America by wearing this ribbon.” Because of her success in passing out thousands of ribbons, many corporations and news outlets reached out to Haley asking to showcase her ribbons and the message she was promoting. She declined each offer as she believed they were “too corporate”, but Self magazine was increasingly persistent. The magazine’s lawyer insisted they change the symbol’s colour, and the pink ribbon was born. In October 1992, the pink ribbon first spread across the nation after Estée Lauder displayed the symbol on its cosmetic counters throughout the country. While the iconic shade of pink is normally associated with Breast Cancer Awareness Month, other colours have been introduced, including hot pink for inflammatory breast cancer; teal and pink for hereditary and gynecologic cancers; pink and blue for male breast cancer; and teal, pink, and green for metastatic breast cancer. According to the American Cancer Society, breast cancer is the second most common cancer in women after skin cancer. There is a 13 per cent chance, or one in eight chance, that a woman will develop breast cancer at some point in her lifetime. Although breast cancer is more typically associated with women, it can also occur in men. In 2021, President Joe Biden designated 17 October to 23 October as Men’s Breast Cancer Awareness Week. While Friday the 13th may be a spooky-themed day, don’t forget that it’s also Metastatic Breast Cancer Awareness Day. Read More Elizabeth Hurley issues reminder to women about getting mammograms as she raises awareness about breast cancer Amy Dowden delights Strictly Come Dancing fans in surprise appearance amid breast cancer treatment Jill Biden urges women to get mammograms or other cancer exams during Breast Cancer Awareness Month Elizabeth Hurley issues reminder to women about getting mammograms Sharon and Ozzy Osbourne ‘plan to be euthanised’ if they lose mental abilities Billy Connolly says reports of his ‘demise have been greatly exaggerated’
2023-10-13 06:17

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2023-08-30 18:57

One in 10 ‘spending beyond their means’ – try these 7 cutbacks guaranteed to save families money
Times are hard, and it’s no surprise to learn many people are spending more than they earn. New research has found one in 10 people spend more than they have in their current account at least seven months each year, and more than half (59%) spend more than they earn at least one month a year. The research, for website TopCashback, also revealed that while parents with children under 18 typically have just £179 left in the bank the day before payday, nearly three-quarters (73%) of people feel they don’t have their spending fully under control, with nearly half (47%) citing the rising cost of living as the cause. And around two-fifths (41%) admit they feel anxious about the cost of living on a weekly basis. “So many people are guilty of spending above their means – let’s face it, it’s why credit cards are such big business,” says finance expert Vicky Parry, head of content at MoneyMagpie. She says emotional spending can be a real issue, pointing out: “When we feel deprived of something, it makes us seek out that dopamine to feel good, so we online shop, and we buy things we don’t even need.” And Rajan Lakhani, a money expert at the smart money app Plum, says: “With wage growth now beginning to exceed rising costs, households may be tempted to spend even more.” But he stresses it’s important to try to get any high interest debts down before succumbing to spending temptations, and notes there are plenty of easy ways for families to reduce their spending. Here, Parry and Lakhani outline their tips for family cutbacks as the cost-of-living crisis continues to bite… 1. Avoid brands Parry advises families to stop buying branded goods in the supermarket, pointing out that the mark-up can be huge. “More often than not, it’s made in the same factory as the supermarket’s own-brand product,” she says. “If you equate a brand as a stamp of good quality, then try to change this mindset – look at the taste awards and you’ll see many own-brand and cheaper products are superior.” 2. Get the kids involved with cutting energy bills If they’re old enough to understand, talk to your kids about why it’s important to switch off lights when they leave a room, and why the heating might not be on as much when winter comes. Lakhani says: “As a dad, I’m having to constantly tell my eldest daughter to switch off the lights when she’s left the room. That helps in the short-term, but explaining to children why it’s important to do this, whether it’s the benefits for household bills or the environment, means they’re more likely to remember.” He says smart meters also provide a fun way to bring cost-saving to life for kids, as they can see the impact of switching off lights or turning off appliances that aren’t being used. “It becomes a game for them, and you can create competitions around who’s being the most energy-efficient,” he suggests, pointing out that children’s help could make an important difference, as although energy bills have fallen, prices are still far higher than they were at the start of last year. 3. Budget Keeping your eyes firmly on a budget is the first step towards stopping overspending, stresses Parry, who points out there are some good budgeting apps that tell you what your monthly budgets should be. “Have lists of items you want, items you need and items that will make your life easier,” she suggests. “If you see a top in the sale, yet ‘top’ isn’t on those lists, you’re being impulsive. It’s a good way to remember what you genuinely need.” Lakhani says it’s crucial to budget in the supermarket, and families need to “develop your special superpower” against clever in-store marketing ploys. “Have a set budget and shopping list, and ringfence how much you want to spend on groceries,” he advises. He suggests buying groceries online can help with set budgets, because you can see how the costs are totting up as you put them in your virtual trolley. “Buying groceries online also reduces the chances of being tempted by impulse purchases and kids asking for extra things, while also being easier to find offers,” he says. 4. Childcare share After-school clubs may be a necessity for some parents, but the cost can be crippling – Parry points out that the average fee for an after-school club is usually between £8-£15.50 per session, so five days a week for the 39 weeks of the school year can cost as much as £2,925 per child per year. But you can cut that cost completely, she says, by getting a group of trusted parent friends together and taking it in turns to have all the children over after school for one night each a week. 5. Walk more Although it’s often tempting to use the car for short trips like the school run, Lakhani stresses: “Walking the kids to school is not only good for your pocket, but for the planet and your health. It also gives you more face-to-face time with your children, so you have more time to know how they’re feeling and what’s going on at school. “With petrol costs on the rise again as oil prices are increasing, this is a relatively simple way to cut your costs.” 6. Beware of hobby stacking Hobby stacking is when kids develop a passion for a particular pastime, and then forget it and move on to another within a few weeks. “Before you go out and buy all the kit and gear for something which is essentially a phase, try and borrow it from a friend, or make do, until you’re sure this passion is a long-term investment,” Parry advises. 7. Cut nappy costs If you’ve got a baby, nappies can cost a small fortune, but Lakhani says you can save money by buying them in bulk or having a subscription, which are often discounted. “If you’re buying in bulk,” he says, “ensure you don’t purchase too many, as you could be left with nappies that are the wrong size as your baby grows.” In addition, compare the price of nappies at different retailers, or for an even cheaper option, use reusable nappies. Not only are they cheaper (in the long run), but they’re better for the planet too. Read More Charity boss speaks out over ‘traumatic’ encounter with royal aide Ukraine war’s heaviest fight rages in east - follow live What is combination cholesterol therapy, as study suggests it could save lives? Cancer cases in young people ‘are rising’ – the warning signs to look out for How construction expert Daniel Ashville Louisy went from social media star to TV host
2023-09-06 21:29

Inside the 'Are We Dating the Same Guy' Facebook groups exposing cheats across the world
Modern-day dating feels like a complicated sport. And now, with a whole new vocabulary to describe every trial and tribulation, it’s becoming even more challenging to break out of the amateur dating division. Is it a red flag, a beige flag, or an amber flag? Is he ghosting me? Breadcrumbing me? Lovebombing me? Who knows, maybe he’s on the verge of delicate dumping me? Welcome to smart dating in the digital era. So, you’ve learnt the zeitgeisty lingo and have a newfound confidence in identifying certain behaviours. Things are seemingly going well with a third Hinge date on the horizon – then BAM. You find your promising beau’s face splashed across a Facebook group filled with tens of thousands of strangers asking: Are we dating the same guy? Originating in New York with over 110,000 users, the Facebook group has since branched out to London, Paris, Dubai, Toronto, Dublin, Los Angeles and Boston. For the blissfully unaware, Are We Dating the Same Guy works like this: Women share screenshots of dating profiles and ask for intel or red flags. The Facebook posts are often inundated with personal experiences ranging anywhere from STI claims, cheating allegations and toxic behaviours. To join the groups, women are asked a series of questions before agreeing to a set of robust rules and digitally swearing they will not leak any of the group’s contents to outsiders. Among the rules are no doxxing (publicly sharing someone's personal details), no roasting, and no naming of the men. That said, it's become all too easy to identify people online through reverse image searches and word of mouth – to name a few. “The popularity of these groups are in alignment to the increase of smart dating – this is a phase that I think society is in,” dating expert Paul Brunson tells Indy100. “We’re becoming more aware of dating behaviours – a prime of that being the word ‘toxic.’ Twenty years ago, no one was speaking about ‘toxic dating’, but now there are many people who believe they can define it.” The intention of Are We Dating the Same Guy is to keep women safe and create awareness about toxic behaviours. “These groups have great intentions because ultimately it is about identifying dangerous people and behaviour, which is a good thing,” Paul explains, citing that while women are going through an incredible “empowerment phase” with “more time and command over the dating space,” it is still is very much “far tilted on the man’s side.” “We still are living in a society that is far greatly tilted towards men when it comes to dating, and it’s not just men from a general standpoint,” he continues. “It’s even some of these terrible nuances in dating.” These include narcissists, psychopaths, Machiavellians, and sadists – people that contribute to the psychological theory of personality. Furthermore, a recent study from the charity Plan International worryingly revealed that a third of German men still find physical violence against women to be acceptable. A staggering 34 per cent admitted to violence against their partner to “instil respect in them.” Meanwhile, a further 33 per cent thought it was acceptable if their “hand slipped” during an argument. “The fact that we still have survey results like that shows that we definitely need spaces to protect and empower women,” Paul adds. Paul, who recently added Global Relationship Insights Expert to his impressive matchmaking resume in addition to Married at First Sight and Celebs Go Dating, explains how we’ve got “much more information and content around dating than ever before that goes beyond anecdotal.” There's now empirical evidence, with researchers who have been conducting studies for 10-20 years, which Paul believes to be the “driving force behind smart dating.” Paul highlights that women are becoming exceedingly great at dating which is often driven by feedback loops due and open discussions about their experiences. They've become more emotionally available, more courageous, and understand how to be less neurotic when dating. Men, on the other hand, hardly have any feedback loops, and Paul believes we could actually benefit from mixed-gender groups, as men need to catch up and “have a higher dating IQ.” “We know that guys suck when it comes to emotional intelligence, compared to women – so a lot of it is poor execution.” Ultimately, there are “far fewer bad guys than there are good guys.” We know bad men exist, but according to evolutionary psychologist Dr David Buss, the highest percentage of men that fall into the dark tetrad personality types is 15 per cent of the population. "That's the group that has evil intentions," Paul continues. This is not to get confused with misalignment and miscommunication when dating. When intentions aren't communicated, you could end up with two people seeking two different things. Subsequently, the person who seeks long-term commitment views the behaviour of the short-termer (i.e. casual sex and friends with benefits) as toxic. “Ultimately, I think we have a lot of guys that their intention is not fully outlined, and because of the misaligned intention you have the interpretation of their behaviour as being ‘toxic’, when in actuality, sometimes it’s not,” Paul explains. To make dating a more positive, safer and enjoyable experience, Paul shared three invaluable tips to have under your belt: Don’t exchange personal information right away A dark tetrad or a straight scammer will try and move you off the app quickly. And the reason they try and do that is because the apps are really good about safety now. If someone is asking for your personal information, the safety features will inform you not to send that information, thanks to the AI built into the app. If you have given up your information, the app can no longer protect you. Stay on the app and let it protect you. Be cautious when people ask for things The moment you have anyone ask you for anything, mainly money, that is a huge red flag. It doesn’t necessarily need to be a grand amount, it could be as simple as “I don’t get paid until next week, please could I have five pounds." Meet in a public space Meet in a public space, never get picked up from your personal address and inform friends about the date details. Most importantly on the first meet-up, set boundaries. You can very quickly see how respectful someone is to your boundaries. An example being, you meet up on your lunch break and you only have until 2pm. When that time comes, do they try and push you to stay even longer – despite informing them you have to leave because you have something to do? Anytime someone is disrespecting your boundaries, that is also a red flag. Have your say in our news democracy. Click the upvote icon at the top of the page to help raise this article through the indy100 rankings.
2023-06-21 20:50

Sophie Turner sues to force estranged husband Joe Jonas to turn over children's passports
Actor Sophie Turner has sued her estranged pop star husband Joe Jonas to force him to turn over the passports of the couple’s two young daughters so she can take them to England
2023-09-22 05:59

Transgender influencer Dylan Mulvaney says Bud Light didn't support her during backlash
Transgender influencer Dylan Mulvaney says she felt abandoned by Bud Light after facing “more bullying and transphobia than I could have ever imagined” over her partnership with the beer giant
2023-07-01 00:19
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