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Many people with Huntington’s disease are being turned away from traditional mental health support, a charity has claimed as it called for more to be done to help people with the condition. Some mental health services have told patients that they do not have the specialist care needed, leading to the Huntington’s Disease Association calling for better help and support for people living with the disease. Huntington’s disease is a condition that stops parts of the brain working properly over time and can lead to problems with movement, cognition (perception, awareness, thinking, judgment) and mental health. Most people with the inherited condition will start to show symptoms between the ages of 30 and 50 and it gradually gets worse for around 10 to 25 years until the person dies. During all this time, my mental health was worsening. I’d seen my uncle commit suicide a few years before after his diagnosis and him not receiving the correct support and I was at a similar point Daniel Johnston There is no cure for Huntington’s disease or any way to stop it getting worse. A small new poll of 105 people with the condition, shared with the PA news agency, found that 85% had attempted to access community mental health services. But among this group, 56% claimed they had been denied access to care, the Huntington’s Disease Association said. Daniel Johnston, from Horam, East Sussex, said his local mental health service “didn’t know” where to refer him. The 41-year-old father of two said: “When I tested positive for Huntington’s, there was no specific pathway from that point for any mental health support. “I was confused, upset and angry about the diagnosis. I didn’t, and still don’t, fully understand my feelings of confusion and anger. “I wasn’t referred to a professional psychologist or anyone who knows how to support someone with a life-changing diagnosis such as Huntington’s. “During all this time, my mental health was worsening. I’d seen my uncle commit suicide a few years before after his diagnosis and him not receiving the correct support and I was at a similar point. “It was only when I explained to my consultant in our six-monthly appointment earlier this year the extent of my thoughts that he contacted the crisis team for me, and they began a course of daily calls for two weeks. “From this point onwards it’s been getting better, but I feel so sad for others who slip through the net so easily. “It’s as if people get afraid when you mention Huntington’s and there’s confusion around treating Huntington’s and treating mental health. “I’m not surprised by the amount of people being denied access to mental health support services due to having Huntington’s – I have been one of those people and it’s really scary.” The charity said hurdles often occur for patients after they have been referred by their GP for mental health support. Local mental health teams have told patients that Huntington’s “doesn’t fall under the remit of what they’re able to provide treatment for”. The charity has launched a new campaign, Mindful of Huntington’s, to raise awareness of the cognitive impairment symptoms of the disease, and has called for greater access to mental health support. Cath Stanley, chief executive of the Huntington’s Disease Association, said: “Many people think of Huntington’s as a disease which impacts movement, but that is only half the story, and the non-physical symptoms are often overlooked. “At the Huntington’s Disease Association, we find people will most commonly be referred to mental health services due to cognitive symptoms such as irritability and aggression. “Throughout May, we will be focusing on these cognitive symptoms and the life-changing impact they can have. “The stark findings we’re announcing can’t be ignored – people are asking for much-needed mental health support, being turned away, and their health is deteriorating further. It is disappointing but not surprising to see that there’s still a lot of misunderstanding around Huntington’s.” To find out more visit: www.hda.org.uk Read More Charity boss speaks out over ‘traumatic’ encounter with royal aide Ukraine war’s heaviest fight rages in east - follow live Scottish first minister Yousaf calls cost of coronation ‘uncomfortable’ King Charles and other royals return to work after coronation Prince Harry’s ghostwriter opens up about harassment after ‘Spare’

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PHOENIX--(BUSINESS WIRE)--Aug 22, 2023--

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The ‘big four’ international fashion weeks are set to debut their spring/summer 2024 womenswear catwalk shows starting on September 8. Designers will be showing off their latest collections beginning in New York, followed by London, Milan and Paris. Heritage brands and up-and-coming names alike will be hoping to make headlines, generate online buzz and secure the hottest celebrities on the front row. Here’s what we’ve got to look forward to from the four fashion capitals for SS24… New York When: September 8 to 13. What’s the vibe? “New York’s a bit more established, it’s a bit calmer for me,” says celebrity fashion stylist Miranda Holder, who usually attends shows on both sides of the Atlantic. “It feels more corporate at times. You can spot the industry professionals like Anna Wintour on the front row and you’ve got the Hollywood polish.” Who will be showing? Carolina Herrera, Michael Kors and Ralph Lauren (returning after a four-year hiatus) are among the New York Fashion Week stalwarts, while celeb favourites Brandon Maxwell and Christian Siriano are always big draws. While not technically part of the official schedule, supermodel Naomi Campbell will be jumping on the Big Apple bandwagon, presenting her collaboration with fast fashion retailer Pretty Little Thing on September 5. The catwalk show is billed by the brand as an “electrifying fashion experience, echoing the British fashion icon’s ethos of innovation, glamour and empowerment”. London When: September 15 to 19. What’s the vibe? “I always see London as the launch platform for a lot of people,” says John Bruce, director of PRM model agency. “It’s pretty exciting because sometimes we need to support the new ones in order to see them grow.” Holder adds: “The East End has become very trendy and now a lot of designers, particularly emerging ones, are over in the East End, plus the venues are trendier there.” Who will be showing? Highlighting the city’s commitment to supporting fledgling designers, this season marks 30 years of the British Fashion Council’s NewGen scheme, with 20 catwalk shows slated including hotly-tipped names S.S.Daley, Yuhan Wang and Labrum London. Several major exhibitions are timed to coincide with fashion week. Rebel: 30 Years of London Fashion at the Design Museum is curated by the BFC’s Sarah Mower; Gabrielle Chanel: Fashion Manifesto opens at the V&A; and The Missing Thread: Untold Stories of Black British Fashion will be held at Somerset House. Major labels on the London schedule include Burberry (it’s Daniel Lee’s second season at the helm of the heritage brand), plus royal favourites Erdem and Emilia Wickstead. Milan When: September 20 to 26. What’s the vibe? “Milan has super cool brands,” says Bruce. “It’s an absolutely amazing city, but their market is a little bit more conservative. The show du jour is the Prada show – that normally sets a lot of tone for the season.” Who will be showing? Following two noteworthy departures, all eyes are on Gucci, where Sabato De Sarno presents his debut collection after Alessandro Michele’s exit, and Tom Ford, where Peter Hawkings has taken over from the eponymous founder as creative director. London Fashion Week transplant Karoline Vitto will debut on the Milan schedule, and it’s business as usual for a slew of Italian fashion houses, including Giorgio Armani, Dolce and Gabbana, Fendi, Moschino, Prada and Versace. The Camera della Moda Sustainable Fashion Awards will take place at La Scala Theatre on September 24, honouring designers who combine creativity and eco-friendly production. Paris When: September 25 to October 3. What’s the vibe? “The shows are just spectacular,” says Holder. “They often take place in wonderful historic ballrooms or palaces or something like that, so you’ve just got a whole new element of romance about Paris.” Bruce agrees: “I would say Paris is probably the most glamorous. You feel the elegance, you feel the richness.” Who will be showing? The longest of the big four weeks, spanning eight days, Paris is home to French fashion behemoths Chanel, Saint Laurent, Dior, Louis Vuitton, Givenchy and Balmain. British brands Alexander McQueen, Vivienne Westwood and Victoria Beckham take their usual slots on the City of Light schedule, while Mugler, Maison Margiela and Carven are the most highly anticipated returns. Former Celine creative director Phoebe Philo (worshipped among fashion obsessives) is also set to unveil the first collection from her eponymous label in September, but it’s unclear whether this will be during Paris Fashion Week. Read More Charity boss speaks out over ‘traumatic’ encounter with royal aide Ukraine war’s heaviest fight rages in east - follow live How can parents and children battle back-to-school anxiety? Can you grow a lemon tree from a pip? The beginner gardening questions we all want to ask Fraser Franks undergoing heart surgery – four years after ‘hidden’ condition cut short football career